Juliet Holt Klinger, MA, Expert on Dementia Care

Contact Juliet
09 January 2017
mom and adult daughter

 

A friend of mine recently confided in me about her concerns with her mother’s dementia and how full-time caregiving was affecting her life. She was overwhelmed, the time, energy and financial strain were taking a toll. Having worked with scores of family caregivers throughout my career, I understand what she is experiencing. I know the cost of caring for a loved one at home can be staggering – financially, emotionally and physically. 

Unfortunately, her situation is all too common. Statistics tell the same story. On average, caregivers spend 24.4 hours a week providing care to their loved one with nearly one-quarter dedicating 41 or more hours of care a week, says this Caregiving in the US 2015 Report. Caregiving isn’t always a short-term job, either. The typical caregiver provides care for an average of five years and expects to continue for another five years.

Financial Costs

Many caregivers are shocked at the stunning cost of caring for someone living with dementia. On average, caregivers lose more than $15,000 in annual income, points out the Alzheimer's Association, whose survey found many had to cut back on their own family’s food and medical care because of insufficient income. The Shriver Report: A Woman's Nation Takes on Alzheimer's found that the average cost of care for someone living with Alzheimer's is $56,800 per year. Of that cost, 60 percent — $34,500 per year — is covered by the family themselves. Although the bulk of that is in uncompensated care, families sometimes pay out of pocket for expenses as well.

As with many aspects of dementia, it is vital for those diagnosed with the disease to talk to their families about their wishes. Talk about formal care options, like long-term care or assisted living, discuss home health or ask about dividing caregiving responsibilities between family members. Once you understand your loved ones goals, you can make financial plans accordingly.

The Alzheimer’s Association is a great resource for understanding the costs of caregiving. The AARP has a site devoted to caregiving resources and pre-planning. 

Impact on Physical and Emotional Health

Impact on Physical and Emotional Health, The demands of looking after a relative often affect the caregiver’s own health. According to the Alzheimer’s Association, nearly 60 percent of dementia caregivers say the emotional stress of caregiving is high or very high and about 40 percent suffer from depression. 

Those who provide unpaid care (of any type) for 21 hours or more each week are particularly vulnerable to emotional stress and physical strain. On average, caregivers spend about $800 more per year on healthcare than non-caregivers, according to Brent Fulton, a coauthor of the Shriver Report. The 2010 Estimating the Impact of Caregiving and Employment on Well-Being report also notes that the number of positive activities caregivers engage in is reduced by 27.2 percent as a result of their responsibilities. The Family Caregiver Alliance has gathered additional sobering statistics on this issue. 

I encouraged my friend to consider the impact this loving but very intense duty is having on her own life and whether it may be time to consider other options. I reassured her that doing so is not selfish – it can be for the best for everyone involved. I encourage all caregivers to do the same.

 

Like what you read?

Click here to sign up for news alerts.

Share on Social Media